Blood work

I keep telling myself to be positive and to keep smiling… but that’s not being real. It’s okay not to be okay. I don’t have all the answers. I am so incredibly tired of this. My body hurts. Ehlers-Danlos Syndrome sucks. Please pray for me, God’s got this.

Physical Therapy 

Time to be honest. I feel so defeated today. Physical therapy was hard… I couldn’t do the simplest of things. My hips are extremely tight, which is frustrating because I do my PT exercises everyday. I kept getting corrected on the way I stand and walk. I even got this fun tape to visualize how…

Breathe

We constructed a plan and ways to navigate  this; which is SO unlike me to do. Planning means commitment; and I am so use to commitments falling through that I try not to plan. Especially, planning how recovery may be. “Let’s start by breathing,” she said. Breathing… I don’t know why, but I don’t like…

I dare you

“I am here for you.” I can’t even began to count how many times I have heard that. It seems to me, it’s something that just gets thrown around. Kinda like when people say, “I love you” and don’t really mean it. It’s said just to shut the other person up. I don’t believe it…